Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group

Oliver, M.; Jayatilleke, A.; Wu, E.; Nuruzzaman, F.; Aguiar, C.; Lenert, A.; Romano, M.; Simonini, G.; Shah, S.; Hollander, M.; Alsaleem, A.; Fox, E.; Theos, A.; Ramanan, A. V.; Schnabel, A.; Lapidus, S.; Tucker, L.; Onel, K.; Ozen, S.; Dedeoglu, F.; Ferguson, P. J.; Shea, B.; Akikusa, J.; Hedrich, C.; Mease, P.; Zhao, Y.

doi:10.1016/j.semarthrit.2021.05.015

Objective: A working group was established to develop a core domain set (CDS) for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO) following the OMERACT filter 2.1. Methods: A scoping review to identify disease-related manifestations was performed, followed by a special interest group (SIG) session at OMERACT2020 to begin the CNO/SAPHO CDS framework. Results: Candidate items were identified from the scoping review and most fell under Life Impact and Pathophysiology Manifestation core areas. A SIG agreed on the need to develop a CDS for CNO and SAPHO (100%) and for children and adults (91%). Conclusion: Based on candidate items identified, qualitative research and Delphi surveys will be performed as next steps.

Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group / Oliver M.; Jayatilleke A.; Wu E.; Nuruzzaman F.; Aguiar C.; Lenert A.; Romano M.; Simonini G.; Shah S.; Hollander M.; Alsaleem A.; Fox E.; Theos A.; Ramanan A.V.; Schnabel A.; Lapidus S.; Tucker L.; Onel K.; Ozen S.; Dedeoglu F.; Ferguson P.J.; Shea B.; Akikusa J.; Hedrich C.; Mease P.; Zhao Y.. - In: SEMINARS IN ARTHRITIS AND RHEUMATISM. - ISSN 0049-0172. - STAMPA. - 51:(2021), pp. 957-961. [10.1016/j.semarthrit.2021.05.015]