The Eating Disorders Well Being questionnaire (EDwell), a new measure of Quality of Life in Eating Disorders

Purpose Eating disorders (EDs) are an important cause of physical morbidity and psychosocial impairment, and eating disordered patients have a worse quality of life than peers. The aim of this study was to develop and validate a new self-report instrument, the Eating Disorders Well Being Questionnaire (EDwell), a measure of eating disorders- related quality of life, which takes into consideration not only the intensity, but also the subjective relevance of physical and psychosocial distress. Methods The questionnaire was administered to 120 eating disordered patients and 60 healthy controls. Patients underwent a psychopathological and clinical evaluation. Test–retest reliability, internal consistency, and psychopathological correlates were evaluated. All patients were also administered the Eating Disorder Examination (EDE12.0D) and the Short Form 36 Health Survey (SF36). A factor analysis was performed to verify the distribution of items into subscales. Results EDwell showed good test–retest reliability and internal consistency. EDwell scores significantly correlated with EDE12.0D total and subscale scores. A significant correlation was also found between several EDwell and SF36 scores. Factor analysis identified three factors: Perfectionism/ Control, Loneliness/Avoidance, Social Functioning. Conclusions The EDwell questionnaire is a feasible and reliable measure of the specific impact of Eating Disorders psychopathology on quality of life.